Press Kit

Author Q&A with Crystal: Endometriosis Awareness Month (March)

1. What inspired you to write your memoir, "Choosing to Live When Told to D.I.E."?

I remember feeling utterly blindsided and frustrated by my diagnosis. After enduring years of painful periods, it took nearly a decade to finally receive a diagnosis of stage 4 endometriosis, also known as Deep Infiltrating Endometriosis. This severe stage of the disease, impacting vital organs, inspired the title of my book. This sudden revelation prompted me to question why medical professionals had never considered it as the root cause of my pain. It was a deeply frustrating and perplexing experience. In 2019, I felt led by God to document my battle with the disease and healing journey. Through the process of writing, I discovered a profound desire to make a difference by sharing my story with others who may be navigating similar challenges.

2. Endometriosis affects millions of women worldwide, yet it's often misunderstood and misdiagnosed. Can you shed some light on the impact of endometriosis?

Endometriosis is a prevalent health concern affecting approximately 1 in 10 women globally. Despite its widespread impact, it typically takes an average of 7 to 10 years for women to receive an accurate diagnosis. This delay can lead to debilitating pain, infertility, and a significantly compromised quality of life. By raising awareness about endometriosis and advocating for improved diagnostic and treatment protocols, we can ensure that women receive timely and effective care.

3. What surprised you most during your healing journey?

What surprised me the most was the realization of how much progress is still needed in understanding the complexities of the human body, particularly regarding a woman's reproductive system. Despite significant advancements, there is still much ground to cover. Additionally, I was struck by the toll that a chronic disease can take on one's mental health. It's not just physical; it can affect your mood and overall well-being.

4. What advice would you give to someone who suspects they may have endometriosis but hasn't yet received a diagnosis?

It's crucial to trust your instincts and advocate for yourself. If you're experiencing symptoms such as severe pelvic pain, heavy bleeding, or infertility, don't dismiss them. Keep a detailed record of your symptoms and their frequency, and don't hesitate to seek a second or third opinion if necessary. Endometriosis can often be overlooked or misdiagnosed, so it's essential to be proactive in seeking proper evaluation and treatment. Additionally, connecting with support groups or online communities can provide valuable resources and support from others who understand what you're going through. Remember, you're not alone.

5. What message do you hope readers will take away from your memoir, particularly regarding issues like endometriosis?

I hope readers will understand the importance of breaking the silence surrounding uncomfortable topics like endometriosis. It's crucial to advocate for oneself, seek second opinions, and trust one's instincts, especially when facing chronic diseases. I want readers to know that it's okay to share their stories and that there is healing in doing so. Ultimately, I aim to inspire readers to confront adversity with resilience and hope, knowing that they possess incredible strength within themselves.

6. What's next for you on your journey as an author and advocate, especially in terms of raising awareness about endometriosis?

I am deeply committed to continuing my efforts in raising awareness about endometriosis and other women's health issues through various platforms. Whether it's through writing, speaking engagements, or community outreach, I want to share personal stories, share the stories of others, and advocate for policy changes. Together, we can create a future where women receive the care and support they desperately need and deserve. Please visit my website crystalbrown.me for resources on how to get involved.